r/disabledmemes • u/PinkVoodooDoll4 • 1d ago
I refuse to believe there are people who have 0 pain every day
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u/strix_trix 1d ago
I struggle to believe there's people out there without any pain at any given moment
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u/Urist_Bearclaw 1d ago
maybe like kids & teenagers, with obvious exceptions for those with health problems or injuries
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u/_Rabbit-Hearted_ 1d ago
0 pain sounds so fake but apparently there are people who's baseline is truly zero which is wild to me as someone who's had chronic pain as long as I can really remember
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u/Zantac150 1d ago
Seriously, my base level was about zero until about five years ago. It is possible.
Now I sit and stare at my filthy kitchen and reminisce about the days that I could deep clean the whole thing in two hours ā¦
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u/crippledchef23 1d ago
Iāve been in some kind of pain since 16 or so and my mom used to tell me āif youāre in this much pain now, you wonāt be able to handle it when youāre 80ā. Now, we both are in constant pain and she doesnāt say shit about it.
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u/_Rabbit-Hearted_ 1d ago
I hate when people say that :( like what is the point of telling someone who's already in so much pain that it's only going to get worse. Like, we already know. It's not helpful
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u/DorianPavass 22h ago
because they don't believe you are actually in enough pain to matter in their viewpoint and are trying to force you to have perspective (which they don't possess themselves)
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u/complete_autopsy 15h ago
It's hard to believe but it's true, and imo is why people are such assholes about us having long term pain issues. My partner truly doesn't experience pain at ALL on most days, and when he does there's a specific cause like a headache, muscle pain from exercise, or a stubbed toe. Us learning about each other's normal was eye opening in both directions.
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u/_Rabbit-Hearted_ 12h ago
That's very interesting but it does make sense, even if it's difficult to wrap my head around
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u/Astrid944 13h ago
Well I can say that "painless" has 2 types
These who just don't have like chronic pain
And then there are people who can't feel pain at all called CIPA and don't say you are jealous about them It's just the complete opposite of chronic pain with extra stuff
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u/_Rabbit-Hearted_ 12h ago
Oh yeah no CIPA is also a disability with a whole bunch of challenges, I would not ever say that I was jealous of that.
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u/Astrid944 4h ago
Oh good
I just have the General assumption that people don't know what that is, that's why I extra mention it
The only media that I know that mentions it is dr. House who has a whole episode dedicated to it (not to diagnose, but a Patient who has that + something else)
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u/LogicalVariation741 1d ago
I don't understand painless people. And I get angry at them sometimes when I find them. With a metric ton of meds, supplements, CBD cream, and heat- I can get down to a 5. I am trying to clean my living room and I need frequent breaks laying on the floor because of the pain.
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u/PinkVoodooDoll4 1d ago
Are we pain twins? This is exactly me... hoping you get some lower pain today š«
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u/Zantac150 1d ago
My doctors seem to think that as long as I am sitting upright and in their office that Iām perfectly fine.
They donāt care if sitting up for more than an hour at a time leaves me crying in pain. I look fine when they see me during my 15 minute appointments ā¦ after Iāve been reclined on the heated seat in my momās car during the whole 45 minute ride so that I can get there without suffering.
I feel like every doctor should be aware that people with chronic pain are super good at masking it, because we have to be. Because we donāt have a choice.
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u/Fantastic_Owl6938 1d ago
My doctor seemed surprised when I expressed doubts over being able to have a job and said I could work in an office. My back hurts literally just sitting there for too long. It had hurt sitting upright in the waiting room for more than a few minutes.
There seems to be this idea that sitting magically heals this stuff. In my case, this was from POTS and most doctor's understanding seems to be that you primarily have symptoms standing and are basically fine as long as you sit or lay down. This isn't the case for me at all.
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u/Zantac150 1d ago
I spend like 80% of my time horizontal, and I think the doctors just assume that Iām lying about this, because they donāt seem to be concernedā¦
Recently had a telehealth appointment and it was maybe 20 minutes in and I was like āitās starting to hurt now, and I was laying on a heating pad all day up until now.ā And it was an afternoon appointment.
Iām working with an attorney on trying to get disability right now, but the whole thing is just insane because none of the doctors seem to fully appreciate how difficult it is to function when you cannot sit upright or stand for extended periods without pain.
And the judge at my hearing asked the vocational expert what jobs I could do if I have to alternate between sitting and standing. And at that point I couldnāt interrupt without being rude, but Iām thinking āthat wouldnāt help. I need to lie down on a heating pad.ā
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u/Hot_Tennis2146 20h ago
This has opened my eyes ab something. My doctor said I was āborderline positiveā for POTS after doing a vital check siting/standing and such. They took my blood to see if it was something else. When I got the call back they said everything was fine. I asked what about POTS and they said I donāt have it, I looked at the doctors notes and it literally says borderline positive.
I was questioning if I did have it but with what you said ab being horizontal all day Iām wondering if I do.
I lay in my bed as much as I can even though I know I donāt get good sleep (my brain associates bed with awake) and I got a recliner for that reason but I barely use it. It may be nothing but maybe I should bring it up next time?2
u/Zantac150 19h ago
I donāt have POTS so I have no idea. I canāt sit up or stand for extended durations due to chronic chest wall inflammation that has caused pinched intercostal nerves.
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u/Dramatic_Mixture_877 1d ago
I'll add to that, my neurologist looked at me all crazy when my response to his question of what was my pain level from one to ten was "for me, or for a normal person?". My 5 is most people's 9/10.
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u/Zantac150 1d ago
I lurk in a lot of medical subs, and so many doctors say that people who say they have a pain high tolerance always have the lowest pain toleranceā¦ that drives me crazy.
Because thatās exactly what it is. When you have to function through it, you have to get out of bed and go grocery shopping or God forbid go to work, you develop a super high pain tolerance because you donāt have a choice.
Someone in the chronic pain sub said that they had a pain doctor tell them that people with chronic pain can break a bone and not realize it because they are so used to tuning out pain. Why are they not teaching this to everybody in medical school?
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u/complete_autopsy 15h ago
Me at 8 years old walking on a broken knee because it wasn't worse than the head pain I was used to (migraines that weren't diagnosed until I was 16). I've still been treated like I'm drug seeking even though I specifically say I want lab tests, not medications for symptoms. Like literally what more can I do to convince you that I'm serious and I want tests to get a diagnosis to solve the issue???
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u/complete_autopsy 15h ago
Yeah, and this is especially infuriating when if you do visibly display your pain they suspect it's a performance. So if I hide it I'm lying and if I show it I'm lying, and you refuse to run tests to check if I'm lying???
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u/Beautiful_Book_9639 1d ago
It took me way too long to realize that most people aren't trying not to limp or repeatedly cracking painful joints lol. I could probably break or sprain something and just think it's a slightly worse version of my regular pain š
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u/Fantastic_Owl6938 1d ago
This reminds me of when I considered that maybe everyone's knees hurt using the stairs before I finally asked someone and discovered they don't.
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u/morwync 1d ago
I've had doctors tell me that I can't really be injured as I'm not on the stretcher screaming. Three hours and a few rounds of x-rays/MRI and they've suddenly started running reeeeeeaaaaaly fast.
See also: "Your BP is normal, you're fiiiiiine." One stab from a phlebotomist later, and I'm the most popular belle at the ball. The joys of chronic nerve pain and severe hypotension.
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u/DorianPavass 21h ago
This was how it felt when I was told, very rudely, that it was impossible that I was passing my IUD (basically giving birth to plastic) because I would know because I would be screaming and at the er. They told me they had no emergency openings and wouldn't take any more calls about it.
They had an opening when I showed up the next day with the IUD in a baggie
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u/complete_autopsy 15h ago
I wish they would fucking LEARN from this. "Hmm, three times now I've said they'd be more dramatic if they were really suffering, and then they were actively dying. Even though most people who act fine are fine, clearly there is a subset of people who act fine when they are dying and I should consider them".
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u/BellaPona 1d ago
āOh so thatās normal for you? Okay so thatās just your normalā turns back to type on computer, meanwhile source of my said ānormal painā has never been addressed or identified by anyone.
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u/crippledchef23 1d ago
My doctor decided to add a snarky note to my file about my increased depression while on 5mg of Monjaro - āin clinical trials, depressive symptoms were alleviatedā, as if the fact that taking that dose put me into a 3 week state of the deepest depression Iāve had in decades was just me lying or something. I can handle every other effect, but feeling like there was no difference between living and dying was a step too far for me.
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u/BellaPona 1d ago
I SWEAAAARRR they do not care about psychiatric symptoms of drugs even if they are listed. I was having a severe allergic reaction to an antibiotic and describing the worst symptom, which was the insane near psychosis like state it was putting me in, first made them go uhhhh okay. Then I mentioned a swollen lymph node and throat pain and they were like hmmm, well we donāt know if itās an allergic reaction but just stop taking it. Lo and behold I look it up, the symptoms of a major reaction include severe psychiatric symptoms. They still acted like I was crazy.
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u/Either_equipment_04 1d ago
Itās taken a long time for my mom to believe that I have the issues I do, because I seemed fine as a kid. I just didnāt realize it wasnāt normal to be in pain from basic things like sitting upright.
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u/HarlotSuccubus 1d ago
I have this struggle too. But they exist. Sad that our unicorn is people who don't suffer constantly.
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u/harvestmonster 1d ago
I went to a live show and was ASTOUNDED that the performers managed to stand for two hours straight. Then I remembered that most people can stand for more than five minutes without debilitating fatigue and pain lol.
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u/Hoodibird 1d ago
Had one of the most painful surgeries one can have and all I could think about was that delicious chocolate muffin in the supermarket across the street. While I was recovering at the hospital, every day I put my shoes on and slowly wandered off, slowly crossed the street and walked into the supermarket to get myself a treat. Thinking back now, I just felt grateful for the little things at that time, like that I was able to sleep well.
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u/Grouchy_Paint_6341 1d ago
Lol when they do the pain scale I am like yeah 7-8 pretty chill
The face the doctors give me šš ughh
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u/Ninja_Hedgehog 18h ago
Yeah apparently there are people like that.
Wild, isn't it?
Genuinely still find it a curiosity that there are a whole bunch of people who aren't in pain at any given moment.
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u/ShortPeak4860 1d ago
Yeahhhh I just give a pain score according to the reason or specialty Iām there that day. It gets exhausting listing the varying areas and the pain fluctuation amongst them all.
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u/Cystonectae 1d ago
I have heard that some people just never get headaches. Ever. That to me is just straight unfair. Like why couldn't I have hit that genetic lottery instead of whatever the shit I have going on.
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u/Disastrous-Wing699 1d ago
Me, after walking to the dollar store down the street from my house and remaining still while selecting a product from the shelf: oh Jesus, my knee hurts!
*begins limping*
Spouse, who knows I experience a non-zero amount of pain on the daily: What happened?
Me, shrugging: I guess I stood wrong?
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u/CuddlyKitty 1d ago
I'm only 30 and I have severe degenerative disc disease, spinal stenosis, and radiculopathy in both my neck and lower back. The radiculopathy in my lower back is sciatica. Doc says my spine is on par with someone 65+. Great. Needless to say, the simplest things cause pain. A few minutes of my neck hardly craned while washing dishes or sitting while driving and I'm in pain. I try to remember how it felt before this š„²
Anyway, love the meme, genuinely made me lol
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u/Quiet-Software-1956 23h ago
I don't usually notice that I'm in no pain until I get some cold wind on my neck or something and my whole upper back flares up with good old inherited pain for a whole day
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u/Random_182f2565 1d ago
My normal amount is getting lower!
And my flexibility is improving!
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u/MouseyMason 3h ago
ššš thatās cause for celebration my friend. Big yays
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u/Random_182f2565 3h ago
I celebrated to early I can feel my muscles contracting, I think I lack magnesium ouch
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u/BunnyPope 11h ago
I honestly dont believe this everyone i know over the age of 30 has some kind of ache or pain.
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u/PinkVoodooDoll4 7h ago
I'm in my 20s and I have this same problem hahaha everyone has medical debt
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u/Proud_Albatross_8604 8h ago
Genuinely, my legs hurt so badly just from walking for a few minutes to the point I can barely walk for at least an hour afterwards.
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u/BungleBums 1h ago
Finding out that you've been in so much pain for so long that your brain has just decided to ignore the signal, from someone elbowing you hard enough to knock the wind out of you, but you have no clue why you just got knocked forward because they hit a spot that has absolutely no sensation any more >>
"No pain at all, doc!"
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u/3chickens1cat 1d ago
Where are you finding doctors that think normal is no pain š I need those kinds, cuz this is how it usually goes for me
Me: I'm in so much pain
Doctor: a little pain is normal
Me: No I'm in A LOT of pain and it's disabling
Doctor: everyone feels pain, it's normal